Hello, and welcome to my blog. I have Complex Regional Pain Syndrome and if you haven’t heard of CRPS well, you are not alone. It is a rare condition in which little is understood. CRPS affects 200,000 patients a year and is a rare neurological disease. CRPS is a painful progressive condition. It corresponds to a group of disorders characterized by a disproportionate spontaneous or stimulus-induced pain. This pain is accompanied by a variably mixed myriad of autonomic and motor disorder. Swelling and pain are also associated with CRPS.

I vaguely remember the phone call from a doctor at the VA Hospital who told me about the diagnosis. To get to the proper diagnosis, I went through a myriad of tests and for two and a half years these tests and medications would challenge my body and my mental health. To add a cherry on top of the sundae, I also have rheumatoid arthritis and fibromyalgia.

I have other things in my life, including love and for that I feel so lucky.

This blog is meant to help myself find my way through this highly complex disease. I want to document my journey. I hope to share it with the world. This may help someone else that might be walking in the same journey. Let’s walk together.